Tuesday, 28 April 2015

29 April 2015 Some Movement is afoot...



Day follows day, and even though we don’t seem to be doing much, it is quite surprising how the time flies.
I am much the same, a bit troubled with pain, but I just have to manage  that with the medications available to me. I don't like dosing myself up too  much but know that it is sometimes necessary.

After several days of phone contact with a number of different people from St Vincent’s hospital, I finally have something firmed up, and have an appointment with an orthopaedic surgeon in Melbourne this coming Monday. Despite being something of an effort to get to Melbourne (I did try for an appointment via video conference) it will be good to see what they determine to be the next step for me after the team discussion of my scans which they had this morning. I’m not looking forward to sitting in a car for two lots of 5-ish hours, but will be very interested to hear what they say. We’ll also spend a night in Melbourne and that will break the trip up.

Brian too has had some medical progress.
In approx 3 weeks he will have a procedure done in Portland, which we hope will make a difference to the bladder issues and pain he experiences.  
And then in June, he will have surgery on his right foot in Ballarat. This procedure (fusing the bones of his arthritic big toe) should make a difference to the pain he has had in his foot when walking. It will be an interesting recuperative period as he has to elevate his foot for 23 out of 24 hours after the surgery, for two weeks! We are not panicking about how we will manage this, and will work out a plan when we have more details about potential surgery for myself.
What a pair we seem to be! However we are just thankful that there is actually something that can be done about all these conditions and that ‘some movement is afoot’.  
My weekly exercise program at the Cancer Rehab group is almost finished, but they are keen for me to continue in the next group. I hope to do this as I certainly need help trying to maintain some degree of exercise and fitness despite the physical restraints which are prone to frequent changes.

Meanwhile despite cooler and wetter weather we have had some lovely outings – probably the highlight being a visit from Marlene (sister). We braved the crisp winds to wander around the Cape Nelson lighthouse, and enjoyed a light lunch there at Isabella’s CafĂ©. We also get to church when we are able, and value the time spent in worship and chatting with our church family. It’s nice to do ‘normal’ things and put our focus on what is going on around us, rather than too much focusing on self and ailments!

At the lighthouse
With Brian at the lighthouse cafe




And finally, on a lighter note…


 




Thursday, 16 April 2015

16 April 2015 Scans and Results



First of all, Brian!
All went according to plan earlier this week, with Brian making a second trip to Geelong to undergo a procedure known as ERCP – in order to sweep out the bile duct from ‘sludge’ which can form gall stones and subsequent abdominal pain. Brian has recuperated well, and was able to drive back home the next day.

And now for myself.
On Monday I had a CT scan, the first since diagnosis which was in early January. This was the first opportunity to see how the cancer is responding to treatment – both radiotherapy and the chemo drug, so I was somewhat ‘twitchy’ awaiting the results.
I have to say I am disappointed, though the results are mixed.
Firstly, the kidney and hip/pelvic tumours: there was no change in size to either of these areas. The ‘cup half full’ scenario is that this is good news, in that the cancer hasn’t increased in size and is being managed by the current drug regime. Unfortunately neither have they shrunk.

The two areas on the spine (T7 and T12) are a bit more concerning as both discs have noticeably deteriorated and basically collapsed with new bone fractures. The scans are not clear as to why – ie has the cancer increased or the weakened bone just collapsed? It certainly explains the increased pain I have experienced in my central back, with moderate compromising of the spinal cord. I guess it means that I am now shorter than I used to be too!

So where to now?  
Firstly, I am to continue on the current chemo tablet, which seems to be keeping things at bay.
Secondly, I will receive a monthly injection (Denosumab) designed to reduce the damage caused to the bones from cancer. This may reduce pain and inhibit further fractures.
Thirdly, I will probably receive a call from the orthopedic team at St Vincent’s hospital, to determine whether they are able to respond to these latest scans.

Well that’s that! Could be better, could be worse.
However I know I am not alone on this walk. When my own resources fail, I am in the best of hands and know that God is lifting me up through this journey.
Your continued prayers would be appreciated.

In the meantime, it has been wonderful to enjoy visits from family and friends, and I have been constantly surprised and delighted by the different ways people have shown their love and support. Special mention has to go to Cheryl and Jack who flew from Queensland to Melbourne before driving to Horsham via Portland! 
Enjoying a cuppa with Cheryl and Jack