Every 2 weeks Brian and I travel to Warrnambool for my treatment. I've had 4 so far, and am very blessed to be suffering no side-effects from the drug (that I know of). The infusion only takes about an hour (Brian reckons the bag looks like it only has about half a glass of the 'liquid gold' drug in it), but I'm one of the last people to leave before lunch-time as apparently there is a lot of paperwork involved with this drug while it is still in the trial stages.
Ah well, I guess that means we have to look for somewhere nice for a bite to eat before heading home.
My back pain seems to have eased somewhat, and I am better able to manage it with the assortment of drugs available to me. Brian meanwhile still has ups and downs, and after a really good patch, he has just had a few bad days - so disappointing and frustrating for him.
Otherwise I'm going along quite well really, keeping myself occupied writing church news for the local Portland newspaper, playing/singing in a church band, pottering in the garden here and there, lots of reading including some book reviews for my good friend Nicky for 'Abundant Life Books'. Prior to this illness it had given me much pleasure to work as a volunteer in the shop, which is filled to capacity with beautiful giftware, books, music, cards and the like. Unfortunately now I can't fit my wheelchair down the aisles!
Last week Brian and I felt pretty 'energetic' (for us) so we drove to the nearby Portland lagoon and we were able to hobble and wheel ourselves right around the lagoon track. We enjoyed the bird life and had plenty of photo stops along the way. It was very good exercise, and worth the stiffness we experienced the next day!
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| This small egret reminded me of myself - trying to balance whilst standing on one leg! |
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