After days of worsening rash (to such an extent that the spots were joined on my upper arms, thighs and torso), I followed the phone instructions of my oncologist and stopped taking the offending drug Sorafenib. The rash disappeared almost before my eyes, and within 2 days had virtually gone. My relief at seeing the rash disappear of course was tempered by the thought of the cancer cells being given the chance to multiply unhindered, so I had a few questions today for my visit to the oncologist, and we have a new plan of sorts. Basically I am back on the drug, and if the rash flares up again I will stop taking it to allow my skin a few days to recover, and then resume the drug on a lower dose. Hopefully my body will adjust quickly, as I am otherwise tolerating the drug very well.
I was a bit disappointed to also learn that my latest chest xray showed a return of the fluid around my left lung. It's not bad enough to cause symptoms yet, but no doubt that will have to be dealt with again in the coming weeks. There's always something to stop boredom setting in.
Meanwhile Brian battles along with his typical scenario of good days and bad days. His GP continues to try new ways of managing the pain and discomfort he experiences regularly. He is currently putting up a new clothesline (ordered online, and which arrived in 4 days from Newcastle) in our undercover area. He will be very happy to not have to dash out to the outside line whenever a dark cloud appears (not to mention birds that seem to aim specifically for the largest items drying on the line).
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